Sharing research for a cure

Over $30 billion is spent annually on disease research in the US alone. This is more than all pharmaceutical companies spend on R&D combined! Yet there is no method or infrastructure for these organizations to share research, or even identify who is funding what research. This results in duplication of efforts and slows discovery.

I'm the founder of Innolyst - a company focused on providing infrastructure and mechanisms for publicly funded research organizations to share data, compare findings, and push forward discovery efforts. We work with many of the largest non-profit foundations in the US and have visibility into their research and funding programs. Through this blog, I hope to provide insight into this largely misunderstood portion of the healthcare sector in order to illuminate the issues faced by researchers, patients, and funding organizations.

I have opinions and am not afraid to call it like I see it. There are foundations that are doing great work and are sharing extensively, and others ... not so much. I will not use the names of specific organizations in my posts to protect the innocent, but I will not pull any punches. At the end of the day, people are suffering from some terrible diseases. We can never forget who the 'customers' are ... the patients and families suffering from disease.